#16 buried alive - (k) a life with me/cfs
In episode #16, the "Plothouse" podcast is devoted to life-(K) a life with me/cfs "of an issue that has so far been unknown to many-but millions: Me/CFS, the myalgic encephalomyelitis or chronic fatigue syndrome. The approximately three -hour episode provides moving insights into the lives of those affected and their relatives in Germany:
with goose bumps, tears in the eyes and listening tensely, the atmosphere can be described when listening to this podcast. While Visa Vie, also called Lottie, presents her episode, it quickly becomes clear how intense and moving the topic is. It seems almost shameful to be able to hear this podcast at all - because people who are very difficult to develop ME/CFS cannot even endure a quiet sound for days or years. Your body can overwhelm the smallest stimulus and ensure that physical recovery can last for months.
Many people have never heard of me/CFS before, which is why it is all the more important that this disease gets more attention in society.
But what exactly is ME/CFS?
Myalgic encephalomyelitis or chronic fatigue syndrome is a neuroimmunological disease that often leads to a high degree of physical disability. The disease usually occurs after an infectious disease, for example after an illness with the Epstein-Barr virus, influenza or-increasingly since corona apandemy-after a corona infection. Therefore, a significant increase in ME/CFS sufferers is expected. Affected people suffer from an acute physical weakness, which is often initially misinterpreted as psychological symptoms. The ignorance in the health system, with a doctor: inside and in society, causes sick people to be left alone with their illness and no help. Around 17 million people are affected worldwide. In Germany, the number of ME/CFS sufferers was estimated to be around250,000 before the Covid 19 pandemic, including 40,000 children and adolescents-and the trend is rising through the pandemic.
In the podcast “#16 buried alive - (K) a life with me/cfs”, Lottie tells of five serious to very serious illnesses from Germany. She talks to relatives or friend: Inside the early days of the disease, the course and the care services, the close to the death of those affected. It describes the situations visually and easily understandable, despite the podcast length of almost three hours. Especially at the end, many affected people or relatives have their say with appeals. They are aimed at the medical and pharmaceutical industry as well as politics and society. In order to make these wishes come true, Lottie has launched his own fundraising campaign (see link below). According to its own statement, some of the advertising revenue from the podcast sequence is also donated. Studio Bummens, the Podcast production company from Plothouse, also wants to donate something to ME/CFS research.
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Listen now:
▶ Spotify: Episode 16-Farming
▶ Further information & sources:
www.mecfs.de/was-ist-me-cfs
www.plothouseepodcast.de/episodes/feinde16
